Muscular Dystrophy

Firefighters approach MDA fundraising with spirit

Today's Tribune-Review (Free subscription) | 07/24/2008

Raising money for the Muscular Dystrophy Association's Labor Day weekend telethon is a summer-long crusade for Swissvale firefighters.

BioMarin Pharmaceutical inks license for muscular dystrophy drug

The San Francisco Business Times (Free subscription) | 07/22/2008

BioMarin Pharmaceutical Inc. licensed a possible treatment for Duchenne muscular dystrophy from Summit Corp. (BMRN)

BioMarin and Summit Plc Sign Worldwide Licensing Agreement for Duchenne Muscular Dystrophy Program

Red Orbit (Free subscription) | 07/22/2008

NOVATO, Calif. and OXFORD, England, July 22 /PRNewswire-FirstCall/ -- BioMarin Pharmaceutical Inc.

• BioMarin and Summit plc Sign Worldwide Licensing Agreement for Duchenne Muscular Dystrophy Program - PR News Wire

East Pierce Raises Funds for a Cause

Red Orbit (Free subscription) | 07/19/2008

By Roxanne Cooke, Puyallup Herald, Wash. Jul. 18--So far this year, East Pierce Professional Firefighters Local 3520 have raised a little less than $14,000 in a "Fill the Boot" campaign to benefit the Muscular Dystrophy Association.

Family Sues for 'Life-Saving' Drug

Time (Free subscription) | 07/18/2008

A Minnesota family is trying to force a New Jersey drug company to give their son an experimental drug for a fatal form of muscular dystrophy, saying he'll die without it

• Family sues co. for muscular dystrophy drug - Physorg
• Family sues for muscular dystrophy drug - MSNBC.com
• See the 4 articles on the same subject

PTC sued by an angry parent in search of PTC124

Fiercebiotech (Free subscription) | 07/18/2008

PTC Therapeutics has been on a roll over the last few months. But the biotech hit a loud bump when the New York Times featured the story of one mother's legal fight to gain access to PTC124 for her son, who suffers from Duchenne muscular dystrophy. PTC just inked a $437 million deal with Genzyme for PTC124, which has demonstrated promising results for treating a segment of the Duchenne MD population....

Family Sues Company for Muscular Dystrophy Drug

Fox News (Free subscription) | 07/18/2008

A Minnesota family is trying to force a New Jersey drug company to give their son an experimental drug for a fatal form of muscular dystrophy, saying he'll die without it.

• Family sues co. for muscular dystrophy drug - Seattle Times

Family sues co. for muscular dystrophy drug

Examiner (Free subscription) | 07/18/2008

A Minnesota family is trying to force a New Jersey drug company to give their son an experimental drug for a fatal form of muscular dystrophy, saying he'll die without it.

• Family sues co. for muscular dystrophy drug - Seattle Post-Intelligencer
• Minn. family sues co. for muscular dystrophy drug - StarTribune.com

Genzyme in $100 million deal for cystic fibrosis, muscular dystrophy therapies

The New Mexico Business Weekly (Free subscription) | 07/17/2008

Genzyme Corp. has inked a $100 million development deal with a New Jersey biopharmaceutical company to develop and sell a new treatment for genetic diseases.

Genzyme Pays Up For Anti-Nonsense Drug

Forbes (Free subscription) | 07/17/2008

The biotech giant will spend up to $437 million for rights to an oral suspension to treat cystic fibrosis and muscular dystrophy.

PTC inks $437M pact with Genzyme

Fiercebiotech (Free subscription) | 07/17/2008

PTC Therapeutics has snared a rich licensing deal with Genzyme for its lead development program. Genzyme has agreed to pay $100 million up front for PTC124 , which is in Phase IIb for Duchenne Muscular Dystrophy. PTC124 also completed a mid-stage trial for cystic fibrosis with "promising" results. PTC retains commercialization rights in the U.S. and Canada with Genzyme taking over the rest of the...

Olympic Swimmer Takes on New Competition -- Duchenne Muscular Dystrophy

Red Orbit (Free subscription) | 07/17/2008

Parent Project Muscular Dystrophy (PPMD), the largest non-profit organization in the United States focused on finding a cure for Duchenne muscular dystrophy (Duchenne), announced today at their annual CONNECT Conference that it will receive a percentage of endorsement earnings from Olympic swimmer Ryan Lochte.

• Olympic Swimmer Takes on New Competition -- Duchenne Muscular Dystrophy - Business Wire

Patient Group Launched In The South West

Medical News Today (Free subscription) | 07/17/2008

The Muscular Dystrophy Campaign recently launched a South West Steering Group to make sure that the views of patients, their families and health professionals are heard at a local level. The inaugural meeting took place at the Lyngford House Conference Centre in Taunton on 30 June.

Photo: Big check to fight MD

Deseret Morning News (Free subscription) | 07/17/2008

Employees of Intermountain Harley-Davidson on Wednesday hoist a check for $145,000 the business raised for the Utah Muscular Dystrophy Association in the 2008 MDA Ride to Wendover. Youngsters who are battling the ailment were on hand to accept the funds. ASHLEY LOWERY

Firefighters filling boots for Muscular Dystrophy

NewsObserver.com - Local & State (Free subscription) | 07/17/2008

On July 26, 100 Raleigh firefighters will head out with boots in hand as they kick off their annual Fill-the-Boot fundraiser for children and adults with muscle-wasting disorders such as Lou Gehrig's disease.